Ehlers-Danlos Society photograph

Ehlers-Danlos Society

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FoundersNancy Rogowski
FoundedMay 1
2016
International Executive DirectorLara Bloom
United States Executive Director Shane Robinson
LeadersLara Bloom
Shane Robinson
Key people Shane Robinson
Lara Bloom
Date of Reg.
Date of Upd.
ID2372406
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About Ehlers-Danlos Society


The Ehlers-Danlos Society is an international non-profit organization dedicated to patient support, scientific research, advocacy, and increasing awareness for the Ehlers-Danlos syndromes, hypermobility spectrum disorder, and related medical disorders.

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